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Showing posts from June, 2024

Hope and the Slippery Slope

     I ' ve been quiet over here for a while, but life has been anything but.  After our hospital stay in March I had hopes of easing into the end of the school year and into summer with little to no issues. It seemed like that could be the case for a week or two, but on April 15 th all of that changed. That was the day Connor started bleeding again.      If the past three years have taught me anything, it’s to not immediately panic when I see red. Our process is to notify CHOP, give it a few days, and if things don’t improve we get some labs. The labs after this particular episode showed that Connor had a GI infection which is always best case scenario. We just had to let it run its course – typically two weeks – and watch for dehydration and/or lethargy. I was able to breathe a little easier knowing we weren’t sliding down the dark slope… or so I thought.      Two weeks went by and Connor’s symptoms worsened which pushed my anxiety i...